Sometimes it feels like the only emotion that really encapsulates the disabled experience is frustration. I think able bodied people expect things to be a lot less centred around anger; they expect us to be either sad and self-pitying or blithely ignoring our disability in order to forge our way forward and "not let it hold us back". Yes, those are themes too, but if it's anything I've found to be the crux of my disabled experience it's flat-out frustration.
Becoming chronically ill at the age of 18 wasn’t a shock. That would imply a startling, one-off incident that sparked everything to go after it. No - becoming chronically ill, or more accurately realising I was ill, was a slow, unpleasant dawn. And the diagnosis of Chronic Fatigue Syndrome (CFS) wasn’t a lightbulb going off,… Continue reading Where is Disability in Art?
Having another creative for a partner is invaluable. (For those who don't know, my partner is a published writer who is currently studying a creative writing master's degree.) Being able to discuss my insecurities with someone who gets it, who knows how difficult it is to make it in the creative field and who knows… Continue reading Why I’m Thinking of Going to Art School